In the early 1970's, a mysterious illness was discovered among children living around the town of Lyme, CT. What was first diagnosed as isolated cases of juvenile arthritis, eventually became known as Lyme disease, one of the most misunderstood and controversial illnesses of our time.
Today, the Centers for Disease Control admits that more than 400,000 people may acquire Lyme disease each year, a number ten times greater than AIDS and West Nile Virus combined. And yet, the medical establishment--with profound influence from the insurance industry--has stated that the disease is easily detectable and treatable, and that "chronic Lyme" is some other unrecognized syndrome or a completely psychosomatic disorder.
During her own struggles with Lyme disease, Susan has battled not just physical symptoms, but a startling ignorance about the illness that pervades the medical community. As she fights to regain her health, she grows ever more resolute in her desire to shed light on both the disease and the fog of secrecy and misunderstanding that surrounds it. In order to help spread awareness about the disease, Susan and her husband, Jim, executive produced the impactful documentary film, Under Our Skin.
Directed by Andy Abrahams Wilson, Under Our Skin is a gripping and often terrifying look not only at the science and politics of the disease, but also the personal stories of those whose lives have been affected and nearly destroyed. The recipient of multiple awards, including Best Documentary at the Houston International, Somona, Durango, Talking Pictures and Camden International Film Festivals, as well as a finalist for the Audience Choice Award at the Tribeca Film Festival, Under Our Skin was further honored by being named as a semifinalist for the 2010 Academy Awards.
“Susan has been a friend and fierce advocate for Under Our Skin,” said Abrahams Wilson. “Her generosity and graciousness stand out, especially considering her own struggle with Lyme disease. I have been moved and humbled by Susan's courage and support, as well as her commitment to her own artistic soul and to the healing of herself and others”.